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Kidney Cancer Canada eNews
Issue 8: 2015

A very busy spring for Kidney Cancer Canada! 
The two main highlights of the season were the 6th Annual Patient Education Conference in Calgary and Kick It Up for Kidney Cancer Canada fundraising event. Kidney Cancer Canada was also present at major international events, notably the 5th Annual IKCC Expanding Circles Conference and the American Society of Clinical Oncology (ASCO) Annual Meeting.
Here is an overview of all activities and updates at Kidney Cancer Canada:

6th Annual Patient Education Conference
Kick it Up for Kidney Cancer Canada fundraising event
Kidney Cancer Canada at IKCC and ASCO
Latest medical and other updates
Upcoming Fundraising Events
Kidney Cancer Canada thanks

The Annual Patient Education Conference brought together an influential line-up of speakers to present everything from the latest treatments to managing side effects and coping with kidney cancer. The meeting empowered people, connecting them with fellow patients and leading kidney cancer experts.
We have videotaped the all-day conference; the videos can be accessed through our website:


Kick it Up is a fun filled event bringing the kidney cancer community together, raising awareness about the disease as well as much needed funds for our work in providing information, support and advocacy.
This year, 185 participants raised $ 60,000 - A great day!  A great event!


2015 IKCC Expanding Circles Conference

We were at International Kidney Cancer Coalition’s 5th Annual International Conference held in Morristown, New Jersey from April 16-18.  The Conference invites organisations from around the world representing patients with kidney cancer. 

This 5th edition brought together 45 patient advocate delegates from 20 countries.  From the US who “has is all”, to Ghana where there are no oncologists, the Conference gave us a great perspective of where we are in terms of access to treatments, how kidney cancer is dealt with and how we can share best practices in advocacy.
See blog post on this link for highlights from the conference.


ASCO 2015

The American Society of Clinical Oncology (ASCO) held its annual meeting in Chicago from May 28-June 2. This meeting attracts over 35,000 researchers, physicians, nurses, health care providers and advocates from around the world. It’s quite an experience to be part of this huge conference that takes over the city of Chicago.
Canada was well represented there with 272 abstracts presented in the form of posters and presentations, the 2nd highest non-US country contribution! It was wonderful to see so many Canadian kidney cancer researchers and clinicians there as well.
See blog post on this link for our non-medical perspective of the sessions we thought were interesting for the kidney cancer patient community.


The information on our website is up to date and reviewed by medical experts.  Here are two important information updates:

 Clinical trials

Kidney Cancer Treatment Guidelines
-  Management of advanced kidney cancer: Canadian Kidney Cancer
              Forum Consensus

Other updates
The 2015 Canadian Cancer Statistics have been published.  Here are some key elements:

  • 6,200 Canadians are expected to be diagnosed with kidney cancer in 2015.

    That is 17 every day.

  • Rates are continuing to rise every year
  • In 25 years, the number of Canadians diagnosed with kidney cancer will increase

    by over 90%

See full report on this link.

Kidney Cancer Canada in Quebec

Nicole Giroux (second from left)                                                                                           

  • Board member Nicole Giroux was honoured by Coalition Priorité Cancer au Québec as spokesperson and advocate for patient access to treatment.  


  • Cancer patients need “Strong Voices” to get the message across to government decision-makers.  Some of these advocates were paid tribute by Priorité Cancer au Québec at their annual conference through the video production of “Des voix fortes”.  Once again, Kidney Cancer Canada’s own Nicole Giroux is one of the advocates honoured in the video.


Gnarly Head Pinot Noir

The Danforth BIA brings back the wine donation neck tag programme.  The neck tags are going on all Gnarly Head wine bottles in LCBO stores in Ontario.  For every bottle of Gnarly Head wine sold, $0,75 will go to kidney cancer research.  The necktag donation will run to July 18.
The Long Ride for Dad

The Long Ride for Dad is a solo motorcycle journey by Tim Charman that will begin in August 2015. The Ride will officially start in Montreal, Quebec and stop in Vancouver, BC before turning south to eventually end in Ushuaia, Argentina. 
Tim Charman says "My personal experience with kidney cancer is the driving catalyst behind this journey. In July of 2012 I lost my father Kevin to kidney cancer at the age of 52. He was diagnosed in May of 2010 and fought valiantly against the illness for over two years. This trip is ultimately in his memory but it is also on behalf of anyone past or present that has been affected by kidney cancer."
The entire Ride will cover a distance of over 30,000 kilometres, passing through 15 different countries along the way. The main goal of The Long Ride for Dad is to raise awareness and much needed funding for kidney cancer research and treatment.
To learn more about this event
To donate to The Long Ride for Dad (all proceeds will go to Kidney Cancer Canada)

Mike Sinodhinos

Tee it Up for Kidney Cancer Annual Golf Tournament raised $ 11,200!
Thank you Mike for the time and effort to organize such a fun event in support of Kidney Cancer Canada!  Pictures of the event on this link.

The Odette Cancer RCC Nursing team
(ongoing fundraising event)

Thank you to the Odette Cancer RCC Nursing team who are raising funds for Kidney Cancer Canada by walking FOR patients who find it a challenge to walk during treatment.  Support this wonderful team – with each donation they are committing TO WALK FOR YOU!  To donate click here.



And that’s a wrap of our latest news and updates in the past few months! 
Stay connected with us and the kidney cancer community by joining the different social platforms. It is an excellent way to stay informed and supported:

Register with Kidney Cancer Canada

Join our discussion forum and connect with other patients and caregivers 24/7! Follow the stories of others, post questions or share your own story.

Facebookstay informed on events organized by Kidney Cancer Canada and latest medical updates in Canada and around the world.

Twitter: stay informed on events organized by Kidney Cancer Canada and latest medical updates in Canada and around the world.
Kidney Cancer Canada Blog: we join many international conferences and give you updates and summaries on key features concerning kidney cancer from these events.
Instagram: a fun social media platform where we publish pictures from our events and give you visual information content on kidney cancer.

From all of us at Kidney Cancer Canada, we wish you a wonderful summer!



Kidney Cancer Canada is a charitable patient-led support organization established to improve the quality of life for patients and their families living with kidney cancer. Kidney Cancer Canada advocates for access to new treatments, provides support and information to patients, funds much-needed research, and works to increase awareness of kidney cancer as a significant health issue.  Our goal is to help patients navigate through information about their disease and ensure they have access to new treatment options available to them.

4936 Yonge Street, Suite 226, Toronto, ON M2N 6S3 | Tel 416-603-0277 | Fax 416-603-0277
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