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Kidney Cancer Canada eNews

Issue 4; 2014

 


topics covered in this issue:
 

  1. New Kidney Cancer Patient Survey – how do patients choose between kidney cancer medications? (a $20 donation to KCC will be made for your participation in this survey).
     
  2. Canadian Kidney Cancer Research Survey – Ongoing study for patients and caregivers – Please share with us where you would like to see research focused.
     
  3. Reminder: Vancouver Patient Meeting Oct 7, 2014  (LIVE WEBCAST across the country starting at 7 pm Pacific time)
 


1 - NEW KIDNEY CANCER PATIENT SURVEY

How do patients choose between medications for kidney cancer?

 

Since 2006, a number of new medications have become available for kidney cancer. In most situations, patients have a choice between medications and make the choice that is best for them in consultation with their oncologist.

Kidney Cancer Canada is participating in a global study to determine how patients take medication side effects into consideration when making treatment choices. Questions are designed for patients to consider hypothetical medications with different types of side effects for comparison.

 

If you are a kidney cancer patient, we invite you to participate in this online survey. The survey takes about 20 minutes to complete and will be open until October 20, 2014.

Please note: Kidney Cancer Canada has received a grant from Pfizer Inc. for our assistance in customizing this survey for the Canadian context. For your participation in the study, Kidney Cancer Canada will receive $20 for each respondent. All responses will be confidential. There is no obligation to participate. Thank you.


To participate, please click here.

If you have any questions about this survey, please do not hesitate to get in touch with us at info@kidneycancercanada.ca
 

Study results will be posted on our website. Results are expected to help researchers better understand the needs and priorities of patients living with kidney cancer.
 


 

2 - ongoing SURVEY

Research priorities of Canadian Kidney Cancer Patients, Caregivers and Clinicians

 

The Kidney Cancer Research Network of Canada (KCRNC) is asking you to consider participating in a 10-minute research survey that involves sharing ideas about the research you think is needed to help improve the treatment and quality of life of people who have been diagnosed with kidney cancer.


This research survey is directed at patients, caregivers and healthcare professionals who care for people with kidney cancer.  If you agree to participate, please click on the link below to complete the survey in English. By completing the survey, your consent is implied.


http://fluidsurveys.com/s/kidneycancersurvey/
Your responses will be kept anonymous and confidential.
 

If you have comments or questions please contact Dr. Jennifer Jones (Jennifer.jones@uhn.ca or 416-581-8603416-581-8603) at the University Health Network.
 



3 - REMINDER VANCOUVER PATIENT MEETING
Kidney Cancer Treatments and Options

Tuesday, October 7, 2014, 7 pm PDT
Featuring Drs Kollmannsberger and Black
Available as a live webcast for all across the country
See details
 


Kidney Cancer Canada is a charitable patient-led support organization established to improve the quality of life for patients and their families living with kidney cancer. Kidney Cancer Canada advocates for access to new treatments, provides support and information to patients, funds much-needed research, and works to increase awareness of kidney cancer as a significant health issue.  Our goal is to help patients navigate through information about their disease and ensure they have access to new treatment options available to them.

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