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Kidney Cancer Canada eNews

Issue 1; 2014

Happy New Year and a great big THANK YOU to each and every one of you for your support of our work in 2013! Together we ARE making a difference in the lives of Canadians affected by kidney cancer.
 
SAVE THE DATES…
  • Saturday March 29: Our 5th Annual Patient Education Conference will be held on Saturday March 29, 2014 in Toronto. This year our theme is “Take Charge! Managing Your Health & Wellbeing”. We have a great line-up of guest speakers and, for the first time, will be live-webcasting the entire day. To register or learn more click here
  • Thursday May 15: Halifax Patient Education Meeting “The Body – Mind – Spirit Connection: Making a Difference on the Kidney Cancer Journey” with special guest speaker Dr. Robert Rutledge. Click here for more information, register to attend the meeting or register to join via national webcast.
  • Sunday June 1: Our 2nd Annual Kick It Up for Kidney Cancer Boot Camp will take place on Sunday June 1, 2014 at Varsity Stadium, Toronto. Save the date and watch for more details in the coming months!
  • Stay tuned for announcements of dates for our 2014 Patient Meetings across Canada including Newfoundland, Quebec, Ontario, Saskatchewan, Alberta, and British Columbia.
 
TREATMENT ACCESS UPDATES
Many new kidney cancer treatments have been introduced in recent years. Access to those treatments is different in each province and territory. Kidney Cancer Canada makes every attempt to track access to medications for kidney cancer in every province to help you navigate the treatments available in your Province/Territory and disseminate information on all approved treatments and the treatment guidelines for kidney cancer. Key changes recently include updates to access for Inlyta ®, Votrient®, and Afinitor® in several provinces.
 
Our Treatment Access Information by Province/Territory document provides information about which drugs you can access through the public programs in each province or territory. If you have private drug insurance, you may have additional options. Access the document here.
 
VOLUNTEERS NEEDED!
Volunteers are an integral part of Kidney Cancer Canada’s success and are responsible for making this organization what it is today. With your help, we can realize our vision for the future. Here are some ways you, your family or friends can get involved with Kidney Cancer Canada:
     
  • Offer to distribute Kidney Cancer Canada brochures, posters and patient materials to your local urologist, cancer clinic or hospital library
 
  • Help a newly diagnosed patient find out about our organization
       
  • Offer your specialized skills, services or goods to Kidney Cancer Canada
   
If you are interested in volunteering or becoming a member of our Board of Directors, please contact as at 1.866.598.7166
 
MARCH IS NATIONAL KIDNEY MONTH
If you read our recent Blog post “Great Plans for 2014 – Let’s Get All Cancer Drugs on an Equal Footing” you know we have very important plans for March. 

This year our National Kidney Month campaign will focus on the need for full coverage of oral take-home cancer therapies. Our campaign is grassroots and will need as much public support as we can muster. As you can imagine, most people have no idea that they will face this issue until it affects their family directly. You can support us by sharing a campaign website (to be launched early this year), joining our social media campaign on Facebook and Twitter, and through ongoing opportunities to tell your story about the importance of access to cancer drugs and fairness for all Canadians.
 
We hope you will join us. Stay tuned as we release our report, our website, and spread the word that it’s time we gave all Canadian cancer patients an equal chance. No Canadian should need to face financial hardship as a result of paying for their approved cancer medication just because it’s a pill.
 
DID YOU KNOW?
Kidney Cancer Canada is a proud funder and collaborator of the Kidney Cancer Research Network of Canada. The Kidney Cancer Research Network of Canada (KCRNC) is a virtual and inclusive network of clinicians, researchers and survivors committed to the facilitation of kidney cancer research across different sites in Canada that will enhance the knowledge of kidney cancer and its treatment. To learn more about the objectives of the KCRNC, click here.
 
We can only support kidney cancer research and programs with your generous support. Thank you to those who made a year-end donation in December. If you missed our appeal, please consider how you can support Kidney Cancer Canada in 2014 with a monthly donation, a one-time donation, or by creating or supporting a fundraising event in your community.
 
ONWARD!
Catherine Madden
Executive Director, Kidney Cancer Canada
cmadden@kidneycancercanada.ca 
 

 

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