GRPCC eNews 28- November 2017
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Life and Death Matters 

The GRPCC eNews Life & Death Matters will be sent out monthly to provide you with current information about the work being carried out by the GRPCC and its members, as well as upcoming education and training. If you have been forwarded the GRPCC eNews from a colleague or friend and would like to receive your own copy, click the subscribe button below
Welcome to this enewsletter-
    • GRPCC A month in review
    • Annual report
    • GRPCC website
    • Breathlessness Guidelines and Flowchart
  • Education and events
    • GP Palliative Approach Workshop
    • Palliative and End of Life Care
  • Resources and information 
    • Talking about death and dying - new guidance from Age UK and Malnutrition Taskforce
    • Caring for Forgotten Australians, Former Child Migrants and Stolen Generations
    • AllowMe!
    • Dementia Australia, the new voice of Alzheimer’s Australia
  • In the news/ research
    • Sexuality, Intimacy and Palliative Care
    • Music brings healing, comfort to the dying  
    • New research in spiritual care
    • Assisted dying is one thing, but governments must ensure palliative care is available to all who need it
  • Newsletters
    • Advance Care Planning Australia 
    • PalliAGED -

A month in review 

The GRPCC manager, Anny has just returned from her much deserved long service leave all refreshed and ready to go.  A big thank you to Carol who has been acting manager in Anny's absence.   Carol's hard work and dedication over the last four months has been invaluable to the GRPCC team and stakeholders. 

October saw two workshops held for staff working with older people in the Central Gippsland community. The 48 attendees gained valuable knowledge and understanding of palliative approach for older people living in the community. 

Link Nurse training in Bass Coast is now complete.  Link nurse training offers an opportunity to increase  knowledge and understanding of a palliative approach and gives participants the tools to provide support to other staff. 14 nurses completed this training.  Thank you to Rose Lodge Aged Care Facility for hosting the workshops.   Further link nurse training will be offered throughout Gippsland in 2018.  If you have any questions regarding Link Nurse training, please contact Carol Barbeler. 
GRPCC Annual Report 2016-17

The GRPCC Annual Report 2016-17 is now available to download from the GRPCC website.  The Annual Report was provided to the Victorian Department of Health in October and details the work and key achievements of the GRPCC in 2016-17.
Click here to view the GRPCC Annual Report 2016-17

GRPCC website   

A new GRPCC website is currently under construction. The new design will provided users with more streamlined access to all the valuable tools that the GRPCC has to offer.

The existing GRPCC website  is still available in the interim with all the useful documents and links that we have previously provided to you. Please be aware that the website is not formatted as usually and may appear messy.  We appreciate your patience during this time.
Breathlessness Guidelines and Flowchart

The GRPCC Clinical Practice Group (CPG) has produced multiple guidelines and documents to assist health professionals and carers in recognising and delivering evidence based practice in palliative care.
The importance of evidence based practice cannot be underestimated in the palliative care environment, whether in the community, in residential aged care, or the inpatient setting. We will be featuring one of the guidelines each newsletter. This month highlights the Breathlessness Guidelines and Flowchart.

To view the  Breathlessness Guidelines and Flowchart and other CPG endorsed Guidelines click on the buttons below.
Breathlessness Guidelines and Flowchart
GRPCC CPG Guidelines
Education and Events

GP Palliative Approach Workshop

Gippsland Primary Healthcare Network in collaboration with the Program of Experience in the Palliative Approach (PEPA), is hosting a GP Palliative Care workshop to develop a greater understanding of the palliative approach to care and its application in general practice.

The interactive workshop will be facilitated by clinicians with extensive palliative care experience. Workshop will cover:
  • Key strategies for identifying individuals in the general practice setting who may be approaching the end of life.
  • Strategies for communicating with patients and families about prognosis and goals and preferences for care
  • The principles of end of life care, including assessment and management of pain and other common symptoms
  • Resources to support general practitioners to provide end of life care
  • Self care strategies to effectively manage the personal issues related to working in this field.
Date:    Thursday 23rd November
Time:   6.30pm - 9.00pm
Venue:The Riversliegh, 1 Nicholson Street, Bairnsdale
Cost:   Free
Click here to view flyer
Click here to register

Palliative and End of Life Care
for personal care workers

Personal Care workers in Bass Coast are invited to attend a full day workshop on caring for residents at the end of life.
Date:    Thursday 7th December
Time:   9.30 - 3.30 (registrations open at 9am
Venue: Grossard Court Aged Care Facility, Cowes
Cost:   Free

Please speak to your manager if you are interested in attending this course. 
Click here to view flyer
Click here to register

Palliative Approach for Personal Care Workers

PEPA aims to improve health care, aged care and disability support workers’ knowledge, skills and confidence in the palliative approach to care for people with a life-limiting illness.

This workshop is interactive and provides time for discussion through case presentations and examples. 
Topics covered include:
  • What is the palliative approach?
  • Cancer and Life limiting illnesses- What you need to know
  • Assessment and care planning
  • Managing common symptoms
  • Supporting the psychosocial needs of clients
  • Supporting the spiritual needs of clients
  • Caring for the professional caregiver. 
Date:    Thursday 15th February, 2018
Time:   9.30 - 3.00 (registrations open at 9am)
Venue: Education Centre
             Gippsland Southern Health Service, Leongatha
Cost:   Free
Click here to view flyer
Click here to register


Talking about death and dying - new guidance from Age UK and Malnutrition Taskforce

A new survey from Malnutrition Task Force and Age UK highlights that having conversations around dying and death is still very much a taboo subject and avoided by many people.
In response, they have produced a new book and film to help everyone to feel empowered and confident to talk about death, to ask questions of each other, to listen, to be sure what all of our loved ones would like to happen when death comes. And have the knowledge and ability to ask the right questions to understand and challenge systems, organisations and health care professionals about the care and support of a loved one who is dying.

Click here to view 'Let's talk about death and dying' booklet

Caring for Forgotten Australians, Former Child Migrants and Stolen Generations
An information package for aged care services

The Australian Government Department of Health has created an information booklet for aged care service, to help staff better understand the experiences that Forgotten Australians, Former Child Migrants and Stolen Generation residents have endured and how those experiences effect the way they are today.

Workers in aged care know and understand about groups with anxieties and issues, health issues, language and cultural issues, dementia.The issues and concerns of Forgotten Australians, Former Child Migrants and Stolen Generations are just as real.Given their past experiences, people from these backgrounds may be more sensitive to some aspects of life in aged care homes and institutional settings.

Click here to view 'Caring for Forgotten Australians, Former Child Migrants and Stolen Generations' booklet

Palliative Care Australia

Palliative Care Australia has developed a mobile app, AllowMe!, to assist people to create a community of care around a person at the end of life. 

AllowMe! supports communities to care for people with a serious illness by making it easier to help in practical ways. Carers and care recipients can list tasks, events and visiting times to provide suggestions of how people can assist.

Key functions:

  • Suggest tasks – carers can suggest practical tasks that their community can complete to help. Examples include: Grocery shopping, running errands, picking up a family member from school, providing a meal, mowing the lawn, or walking the dog.
  • Create events – carers can keep track of events and
  • medical appointments and request assistance from the community where required.
  • Visiting times –  communities can see when is a good time for people to visit and who else is going.
  • News – community members can post updates for everyone to see.
  • Medication List – Carers and care recipients can list their medications and set reminders about dosages and timings.
  • Journal – Carers and care recipients can privately record their thoughts and feelings to track their emotions.
  • Resources – dedicated resources to explain what is palliative care, the dying process, ways to support each other, grief, and pain.
Click here to purchase AllowMe! app

Dementia Australia, the new voice of Alzheimer’s Australia

Dementia Australia (formally Alheimer's Australia), represent the 413,106 Australians living with dementia and the estimated 291,163 Australians involved in their care.

They advocate for the needs of people living with all types of dementia, and for their families and carers, and provide support services, education and information.

Click here to visist the Dementia Australia website
In the News / Research

Sexuality, Intimacy and Palliative Care
Hammond Care

A ground breaking program at Neringah Hospital (Wahroonga) is meeting the sexual and intimacy needs of people coming to the end of their life.

While research has shown that patients in palliative care have unmet sexuality and intimacy needs, they are usually not addressed. At Neringah, a 19 bed palliative care hospital, patients and staff are encouraged to normalise topics around sex and sexual desire. [read more]
Music brings healing, comfort to the dying   
KALW Local Public Radio

Hospitals are not the most relaxing places for people nearing the end of life. The intensive-care units, lobbies and hospital wards are full of glaring bright lights and institutional noises.
In this stressful environment, music can be the great equalizer. The soothing sounds can bring peace and calmness. Music can help defuse the tension felt by anxious patients and their families. Today, in many of the Bay Area’s major medical centers, musicians are playing in hospital lobbies and at the bedside. [read more]

New research in spiritual care
Article by Dr Lucy Selman, Research Fellow, University of Bristol for eHospice

Patients’ and caregivers’ spiritual concerns, experiences of receiving spiritual care, preferences in relation to spiritual care, and priorities for research are described in a paper published last week in Palliative Medicine. The results highlight the need for spiritual care, which is often neglected in clinical practice, and provide evidence to inform staff education and future research. [read more]

Assisted dying is one thing, but governments must ensure palliative care is available to all who need it
Article by Stephen Duckett for the Conversation

Assisted dying moved one step closer to reality in Victoria last week with the authorising bill passing the lower house with a comfortable 47-37 majority. Throughout the debate, many MPs spoke of terrible personal experiences of the deaths of family members. Such harrowing stories were also present in submissions to the parliamentary inquiry into end-of-life choices, that recommended an assisted dying regime leading to the bill. [read more]

Mailing Address:

Gippsland Region Palliative Care Consortium
c/- West Gippsland Healthcare Group
Landsborough Road
Warragul  Vic  3820
t:   03 5623 0684

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Gippsland Region Palliative Care Consortium · c/- West Gippsland Healthcare Group · 41 Landsborough Road · Warragul, Vic 3820 · Australia

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