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GRPCC eNews No32 - April 2018
 
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GRPCC eNews
Life and Death Matters 

The GRPCC eNews Life & Death Matters will be sent out monthly to provide you with current information about the work being carried out by the GRPCC and its members, as well as upcoming education and training. If you have been forwarded the GRPCC eNews from a colleague or friend and would like to receive your own copy, click the subscribe button below
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Welcome to this enewsletter-
  • GRPCC
    • GRPCC A month in review
    • Focus On - Dietician
  • Advance Care Planning
    • Changes to medical decision making laws 
    • National Advance Care Planning Week
    • Death Cafe Bairnsdale
    • Advance Life Care
  • Education and events
    • Gippsland Paediatric Palliative Care
    • Working with Disenfranchised Grief, Complicated Grief and Anticipatory Grief
    • Volunteers Conference
    • Unspoken: What will become of me? 
  • Resources and information 
    • PEPA Palliative Care Resources
    • Facilitated Case Conferencing for People with Advanced Dementia
  • In the news/ research
    • The hidden role informal caregivers play in health care
    • Grant funding for ancillary support services
  • Newsletters / Communique
    • PalliAGED News 
    • Volunteering Newsflash 
    • Advance Care Planning Australia eNews
GRPCC

A month in review 

A month in review 

March saw the inaugural meeting of the Gippsland Community of Practice Palliative Care with significant representation from  health services across the region.  The COP identified and agreed on  3 top  priorities to focus their work;  Skills required for palliative care nursing ; Psychosocial care and Volunteer engagement and management.   Preliminary work has commenced on the development of a Palliative Care Skills Matrix self assessment tool for community nurses providing palliative care.  The model is based on the success Maternity Skills Matrix Project implemented in Gippsland. The initial questionnaire has been drafted and will be reviewed by a working party in the coming weeks. This will assist with pathways for nurses and identify educational needs to provide a coordinated relevant approach to palliative care education and across the region . Partnerships with Monash University Department of Rural Health are being explored for evaluation  purposes.. 

Melissa attended the Palliative Care Volunteer Managers workshop hosted by Palliative Care Victoria in March and gained some useful knowledge and contacts which can be shared with the region.

Carol has been busy working with RACF's in Gippsland to complete deceased resident file audit.  The deceased resident file audit is used to identify current practice and opportunities for improvement in palliative approach activities, and to assist the GRPCC to offer targetted education to RACF's.  Over 52% of RACF's in Gippsland have now completed an audit.  For further information or to arrange a deceased resident file audit in your RACF, please contact Carol Barbeler, Palliative Aged Care and Disability Resource Nurse.

Focus On - Dietician

Each month the GRPCC will be highlighting the role of Allied Health in palliative care and providing useful tools and education opportunities.  This month our focus is on Dieticians.

According to CareSeach, Dietitians have particular skills to assist patients to optimise nutritional intake and to develop a nutritional plan which focuses on the patient’s needs and wishes. They are also able to take into account the patient’s current disease context, treatment plans and overall quality of life when developing nutritional plans and education for the patient and family.

For further information on a dietitians role in palliative care visits the CareSearch website.
Click here to visit the CareSearch website
Useful Articles and Guidelines

The Dietitians Role in Palliative Care: A Qualitative Study Exploring the Scope and Emerging Competencies for Dietitians in Palliative Care
Research Article by Pinto IF, Pereira JL, Campos CJ and Thompson JL publish in the Journal of Palliative Care & Medicine

This study offers useful insights into the unique role of dietitians in specialist palliative across a number of domains, and highlights unique competencies required by dietitians working with this patient population. It also identifies several needs related to professional development. More research is needed to further document not only the roles of dietitians in palliative care, but importantly their impact on patient outcomes
Click here to view the study

Nutrition and palliative care

The Palliative Care Bridge have posted an interesting  conversation with Ms Melissa Scattergood about the role of a dietitian, of nutrition and the aim of nutritional management in palliative care and in terminal care.

Click here to watch the video
Advance Care Planning

Changes to medical decision making laws 

The medical decision making laws changed on 12 March 2018 with the commencement of the Medical Treatment Planning and Decisions Act 2016.

The new laws will allow for the creation of new legal documents called advance care directives. Advance care directives may include either or both:

  • an instructional directive with legally binding instructions about future treatment the person consents to or refuses
  • a values directive which documents the person’s values and preferences for future medical treatment.

If a medical treatment decision maker hasn’t been appointed, the Medical Treatment Planning and Decisions Act specifies who has legal authority to make medical treatment decisions for a person who is unable to make these decisions. For example, this may be the person’s domestic partner.

OPA has an updated document 'Take Control' which has the information and forms needed to appoint a medical treatment decision maker, complete an advance care directive or make an enduring power of attorney.

Click here for further information and access to the OPA advice service
Click here to download Take Control

National Advance Care Planning Week

Last week was National Advance Care Planning week. From the 16th - 22nd April Advance Care Planning Australia will be highlighting the importance of  advance care planning across Australia, they are encouraging all Australians to start a conversation with their friends and family about what isimportant to them.  Advance Care Planning Australia have developed some useful guides to assist people  to start having the conversation

Advance care planning - Getting started guide
This booklet is designed to support you in the process of developing an Advance Care Directive, alongside the companion publication, 'A personal guide'.

Advance care planning - A personal guide booklet
This booklet is designed to help you think about your future healthcare choices, to be used alongside the companion guide, 'Getting started'.

Advance care planning fact sheet for individuals and family
Information about advance care planning for individuals and their families.

Click here to download the Advance care planning - Getting started guide
Click here to download the Advance care planning - A personal guide booklet
Click here to the Advance care planning fact sheet for individuals and family

or you can visit the National Advance Care Planning Week website for a full list of events and resources

Click here to visit the National Advance Care Planning Week website

Death Cafe Bairnsdale

Death Cafe is a planned get together for the purpose of talking about death over tea/ coffee and cake. The objective is to create a dialogue around death and dying that assists us to make the most of life and breaches the fear around death. Statistics prove that 100% of us are going to die so lets talk about it!  Death Cafe is not a grief support group or counselling service.

Death Cafe runs from 2pm on the third Thursday of the month at Europa Centre for Conscious Living, St Albans House, 120 MacLeod Street Bairnsdale. 

Click here to visit the Death Cafe Bairnsdale facebook page

Advance Life Care

Advance Life Care is an innovative online service where you can create your own Advance Care Plan quickly, easily and safely and ensure your wishes are respected in an emergency or if you can no longer voice your decisions. Absolutely free.

Click here to visit the Advance Life Care website
Education and Events

Gippsland Paediatric Palliative Care

Due to the success of the Paediatric Palliative Care workshop held in 2017, we are pleased to announce that the GRPCC will once again be partnering with the Royal Children's Hospital to hold a similar  workshops in 2018.

Topics will include:
  • What is Paediatric Palliative Care?
  • Symptom management
  • Ethics
  • Communication
  • Psychosocial and Bereavement support
  • Plus relevant topics of interest as requested by attendees
Date:      Friday 27th April, 2018
Time:     9.30 - 3.30 (registrations open at 9am)
Venue:   Latrobe Regional Hospital, Auditorium
Cost:      Free
Click here to view flyer
Click here to register

Working with Disenfranchised Grief, Complicated Grief and Anticipatory Grief  - SOLD OUT

The second Working with Disenfranchised Grief, Complicated Grief and Anticipatory Grief workshop is SOLD OUT.  There is an extensive waiting list for both the first and second workshops, so if you have registered and are no longer able to attend please contact Melissa at Melissa.spargo@wghg.com.au to cancel

Looking forward to seeing a great turn out

Palliative Care Victoria - Volunteers Conference

Volunteers – supporting people to live, die and grieve well – recognises that broad whole of health and community approaches are needed to support people with a life limiting illness and their families to live, die and grieve well.

The Conference will explore the role of volunteers in providing this support. Participants will share experiences from across the health and human services sector, learn from innovative work that is being done, and explore how volunteers might contribute to the provision of integrated services for this client group.

Date:      Wednesday 23rd May, 2018
Time:      9.30 - 4.00pm
Venue:   Rydges Melbourne
               Exhibition Street
               Melbourne   Vic   3000
Cost:      Free for volunteers outside metro melbourne
Click here to register

Unspoken: What will become of me? 

Unspoken: What will become of me? is an interactive event that explores the themes of ageing, declining capacity, diminished autonomy and sense of identity, gently and with humor.

This exciting, free event features a performance by Born in a Taxi, activities, installations and the opportunity to attend an information forum presented by COTA Victoria peer-educators.

Baw Baw
Thursday 17 May 2018
Where: Warragul Country Club 41 Sutton Street
10.00am - 1.00pm or 2.00pm - 5.00pm (two sessions)

South Gippsland
Wednesday 23 and Thursday 24 May 2018
Foster War Memorial Arts Centre, Main St, Foster Session
10am to 1pm (both days)
5pm to 8pm (23 May only)

East Gippsland
Wednesday 30 May 2018
80 McKean Street, Bairnsdale
12 noon to 3:30 pm or 5:00 pm to 8:30 pm

Click here to view Baw Baw flyer and booking details
Click here to view South Gippsland flyer and booking details
Click here to view East Gippsland flyer and booking details

Resources



PEPA Palliative Care Resources

Victorian PEPA aims to improve the accessibility of quality palliative care in the community by increasing the skills and confidence of health professionals who are caring for people with serious illness, and their families by offering supervised clinical placements that build workforce capacity and enhance links between specialist and generalist healthcare professionals in Victoria. 

As part of the coordination of the PEPA workshops, PEPA has complied an extremely useful list of available resources that they promote and use in their training packages

Click here to view the list of resources

Facilitated Case Conferencing for People with Advanced Dementia

Family case conferences support shared person-centred decision making and advance care planning for individuals living in the community or in residential aged care with advanced dementia who are no longer able to decide care for themselves.

In these situations, health professionals will need to work with a family member or other person with authority to make decisions on behalf of the person with dementia

The Facilitated Case Conferencing for People with Advanced Dementia webpage outlines an approach that aims to improve case conference uptake, relevance and quality by coordination, facilitation and communication (termed facilitated case conferencing).

Click here to visit the planning dementia care website
In the News / Research

The hidden role informal caregivers play in health care
Talk by Scott Williams

Once a cared-for patient and now a caregiver himself, Scott Williams highlights the invaluable role of informal caregivers -- those friends and relatives who, out of love, go the extra mile for patients in need. From personal care to advocacy to emotional support, unpaid caregivers form the invisible backbone of health and social systems all over the world, Williams says -- and without them, these systems would crumble. "How can we make sure that their value to patients and society is recognized?" he asks.
Click here to view the TED talk

Grant funding for ancillary support services
 
In November 2017, the Andrews Labor Government announced a new (one-off) $10 million fund for ancillary support services to assist people, families and carers to manage the day-to-day activities associated with caring for someone with a terminal illness. The grant program is part of the government’s additional funding of $62 million over the next five years for palliative care.

On 11 April 2018, the Minister for Health announced the second round of grant funding for ancillary support services, with revised eligibility criteria. The total funding pool available in the second funding round is approximately $4.4 million.

Grants can be used to provide supports such as (but not limited to): respite and carer support; help with transport and activities of daily living such as preparing meals; household maintenance; and social activities.

Organisations wishing to apply for the second round of funding should be not-for-profit non-government organisations that receive minimal or no state or Commonwealth government funding and comply with one or more of the eligibility criteria listed below:
·        target culturally and linguistically diverse communities.
·        service rural regions of the state.
·        target people without carers who wish to remain at home for as long as possible.
·        demonstrate an innovative proposal that supports people to remain home with their families, friends and local communities for as long as possible.

More information, guidelines and an application form at https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/palliative-care/end-of-life-ancillary-grant   
Newsletters / Communique

PalliAGED News - March
Volunteering Newsflash - April
Advance Care Planning Australia eNews - April
 

Mailing Address:

Gippsland Region Palliative Care Consortium
c/- West Gippsland Healthcare Group
Landsborough Road
Warragul  Vic  3820
t:   03 5623 0684
e:  enquiries@grpcc.com.au
w: www.grpcc.com.au

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Gippsland Region Palliative Care Consortium · c/- West Gippsland Healthcare Group · 41 Landsborough Road · Warragul, Vic 3820 · Australia

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