Copy

Welcome

Dear members and partners,

We are very glad to present the second edition of our Membership Newsletter. 

With the great support of our members, we aim to establish this publication as an important tool for sharing and disseminating MS news across Europe. 

A recurrent theme for this edition is rehabilitation. Physical activity and management of diagnosis also feature. The authors come from countries as diverse as Portugal and Kosovo and employ different styles, from reports to testimonies.  

We believe this newsletter truly reflects the power of MS voices coming together! 

Read more

Source: Under Pressure project (www.underpressureproject.eu)
Bulgaria
2017 goals:
MS registry and national representation 
 
The Bulgarian MS Society announced it has obtained the status of administrator of personal data under national law.

This paves the way for the realisation of two long-awaited projects. 
Poland
Rehabilitation through sport. MS testimony  
 
In 2015 I ran a marathon. It was almost eight years after I had my first MS symptoms.

I am Milena and this is my story.
www.underpressureproject.eu
Republic of Moldova 
No crutches, no benefits: the disability assessment battle 
 
There are many battles facing people living with MS.

In the Republic of Moldova, one of the toughest MS battlegrounds is fuelled by a poor piece of legislation: the one regarding disability assessment
www.underpressureproject.eu
Spain
MS physical activity platform launched online  
The patient organisation Multiple Sclerosis Spain (EME) moved its popular Platform for Promotion of Physical Activity in MS online in a bid to reach a broader audience.

The project targets healthcare professionals (HCPs) and other specialists working with people with MS.
www.underpressureproject.eu
Ireland
Availability issues for approved drugs.
Case study  
 
MS Ireland includes the availability and reimbursement of MS drugs among its priorities as a patient organisation.

The focus for this edition is on the availability of a prescription medicine that treats spasticity symptoms.
Portugal
Providing modern MS rehabilitation 
 
The Portuguese MS Society will relocate and modernise the only rehabilitation centre in the country exclusively dedicated to people living with MS.
Russia 
MS rehabilitation, a family programme   
 
A coalition of local and national patient organisations in Russia worked for five years to finance and build an MS rehabilitation centre.

Open since 2013, the centre helps those directly and indirectly affected by this condition. 

Kosovo
MS diagnosis testimony: I feared it was cancer    
 
My name is Labinot Demi, I live in Kosovo and I was diagnosed with multiple sclerosis in 2015.

But I had been experiencing related symptoms since 2013. This is my personal story.
Copyright © EMSP 2016
All rights reserved


Contact us:
claudiu.berbece@emsp.org

Want to stop receiving these emails?
You can unsubscribe from this list


 






This email was sent to pzlobin@list.ru
why did I get this?    unsubscribe from this list    update subscription preferences
EMSP · Rue Auguste Lambiotte 144 / 8 · Brussels 1030 · Belgium

Email Marketing Powered by Mailchimp