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Welcome to our latest e-Newsletter!

8 November 2016

ESPaCC leaflet
We have recently produced an updated version of the ESPaCC leaflet and you can download a copy from our website. Or if you would like a hard copy for yourself or for a local organisation or support group able to hand a few out, please email our Administration Lead at
SEN support and EHC Plans event
We hosted three events in September, presented by Amaze about how they can help with the process of EHCPs. The events were well attended and found very useful and informative.  Keep checking our website for further dates for this and other events.

CQC Ofsted Local Area Inspections

Don't forget to register your interest on our website if you would like to participate as a parent carer in the Local Area Inspection when it comes to East Sussex!  Keep in touch with what is going on during the preparation with other interested parents and carers. 

Together for Short Lives launched You Can Be That Nurse, a campaign to encourage nurses to work in the sector and help bridge the care gap. The campaign launched with a film featuring three nurses at different stages of their career in hospice, home and hospital.

The film tackles some of the taboos around children’s palliative care by highlighting how rewarding these nursing roles can be; building strong relationships with families and providing holistic care right from the point of diagnosis through to end of life and beyond.

Watch the You Can Be That Nurse film here:  
Share on social media with #YouCanBeThatNurse
Encourage everyone to visit for jobs and volunteering opportunities in children’s palliative care. 

Chailey Heritage Pathways 
Chailey Heritage Pathways will offer highly specialist care for children, young people and young adults with physical disabilities and/or sensory impairments and associated health needs both at home or in the community. Chailey Heritage Foundation is recognised as one of the UK’s leading centres for children and young adults with neurological motor impairment such as Cerebral Palsy. Chailey Heritage Pathways channels all of that experience, expertise and commitment into the wider community.

How We Can Help
We will provide community support whenever and wherever needed. This could range from a few hours to all day, at weekends, evenings, before or after school and during school holidays. Our team of highly skilled support workers will work closely with individuals, family members and other professionals to deliver a person centred package of care and support. Each team member will have all the necessary training to ensure each individual's needs can be met, this will include:
• Enteral feeding e.g. PEG/JEJ
• Epilepsy & emergency medication
• Ventilation
• Suction
• Oxygen
• Medication
We will also look to develop skill sets in order to meet further or changing needs.

Next Step
You can get in touch for more information by Phone: 01825 724 765 or by E-mail: or from our website

Contact a Family Webinar 
Introduction to Parent Participation - Watch this webinar aimed at parents and carers and explore what is meant by participation and understand the benefits of this approach. Professional colleagues might also find this a useful reminder!
Appreciation Awards 
Don't forget to nominate the professional who has gone that bit further to make a difference to the lives of you and your family.  Fill in the form on our website before the end of term and we will send an award to them on your behalf.  

Other information

  • Do you support people with autism - Autism Professional Awards - deadline extended. The Awards acknowledge the outstanding contributions and achievements of individuals, teams and organisations who have demonstrated excellence, dedication and commitment to improving the lives of people on the autism spectrum. The 2017 awards ceremony is the 7th March in Harrogate. If you know someone who you think deserves a professional award please nominate them today.
  • Become a contact - Don't forget to submit your contact forms via the website or directly to
  • Read the latest enewsletter from CAF
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