The guides are based on views of national policy experts, clinicians, researchers and those who have implemented person-reported measures, findings findings from a detailed review of the current evidence and insights from systems expertise and experience.
NHS Long Term Plan (NHS England, 2019) - recognises the need for a ‘fundamental shift in how we work alongside patients and individuals to deliver more person-centred care, recognising the importance of ‘what matters to someone’ is not just ‘what’s the matter with someone’.
Measuring patient experience (Health Foundation, 2013) - provides an accessible overview of the range of methods that have been used to measure patient experience, in order to help practitioners, planners and researchers consider the best approaches for their own local improvement initiatives.
Care Coordination Atlas (CCA): List of 80 measures - measures have been mapped to care coordination domains for three care coordination perspectives using measure numbers and profiles designed to provide more detailed information on the measure’s purpose, format and data source, perspective, validation and testing, links to outcomes, applications, and key sources.
National Patient and Staff Surveys - from patients, services users and NHS staff about the care that they receive or provide. This web page links to survey results published by both NHS England, partner organisations and CQC.
Helping measure person-centred care - evidence review links to an accompanying spreadsheet that provides details of 160 of the most commonly researched person centred measurement tools. The list was created based on screening more than 200,000 studies published between 2000 and 2013. The spreadsheet allows users to search according to the type of tool, who it targets and the main contexts it has been tested in.
International Consortium for Health Outcomes Measurement (ICHOM) - aims “to transform health care systems worldwide by measuring and reporting patient outcomes in a standardised way.” ICHOM organises global teams of physician leaders, outcomes researchers and patient advocates to define Standard Sets of outcomes per medical condition.
Personalised Care: Finance, Commissioning and Contracting Handbook (NHS England, 2019) - guide aims to provide finance, commissioning and contracting staff with the information required to implement personalised care locally. It will enable staff to understand what the expansion of the programme means for their areas of work; what specialist support is available to facilitate the expansion; and what the impact may be on current processes and local contracting arrangements.
Involving people in their own health and care (NHS England, 2017) - aims to help Clinical Commissioning Groups (CCGs) to involve people in their own health and care in a meaningful way. It demonstrates the importance of involving people, their carers and families, to improve individuals’ health and wellbeing outcomes and the efficiency and effectiveness of health services. It also explains how CCGs and NHS England can meet their legal duties.
How to... understand and measure impact (NHS England, 2015) - aims to help local areas to understand and measure the impact of their efforts to integrate services across the provision of health and care. It is intended to be of practical use to members of Health and Wellbeing Boards (HWBs) including: councils, clinical commissioning groups (CCGs), local Healthwatch and voluntary sector members, representatives of NHS England who sit on HWBs, and additional non-statutory members.
Is the NHS becoming more person-centred? (Health Foundation, 2015) - examines how the NHS in England has performed over this parliament in relation to indicators that reflect person-centred care. It considers a range of measures including: dignity, respect and compassion; patient involvement in decisions; support for self-management and care planning.
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