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News for May including NCSE advice paper, July Provision, mani-pedi offer at Anna Schu and more...

NCSE policy advice paper on ‘Supporting students with Special Educational Needs in Schools’
Special Needs Parents Association recently attended the launch of the publication of the NCSE policy advice paper on ‘Supporting students with Special Educational Needs in Schools’. It has been twenty years since the special education system was thoroughly reviewed and many of the recommendations reflect the input of parent and advocacy groups involved in the consultation process held last year.
Of note, is the key recommendation that special educational resources should be allocated on the basis of need and not diagnosis which is in keeping with an ongoing implementation program of restructuring the delivery of children’s disability services in the health sector based on need.
Read more about the recommendations on our website and click HERE for the full advice paper.

July Provision

July provision is a scheme available to children with autistic spectrum disorders and severe to profound learning disabilities. The scheme operates in two ways, home based provision and school based provision. This year application forms need to be returned to the Department of Education by 12th June. You can read more about the scheme plus find a link to our Parent and Tutor finder  HERE

HIQA publishes National Standards

The Health Information and Quality Authority (HIQA) recently published its National Standards for residential services for children and adults with disabilities. These Standards outline to providers what they must do to ensure safe and effective care is provided to people living in, or using, residential and residential respite services. You can download the standards on the HIQA.ie website 
Inclusion Ireland welcomed the new set of National Standards but is calling for regulations to be published by the government so that inspections of residential services can begin. Read Inclusion Irelands press release HERE.

Just for Kids Show Seminars

Angela O'Connor from Special Needs Parents Association & Trainability will be delivering two seminars at the The Just 4 Kids Show - Dublin 2013 in the RDS on Sunday 26th June. One of the seminars is specifically aimed at parents of children with special needs 'An Overview of Health, Education and Social Welfare Supports for Parents of Children with Disabilities' and the second is directed at the general public ' 'Active Friendship- How to Support Parents of a Child with Disabilities'. If you're going to the show, check out the Seminar timetable for the day.

Long Term Illness Scheme

People who have certain conditions and who are not eligible for a medical card, can apply for the Long Term Illness Scheme. This scheme allows children and adults to obtain treatment, medicines and equipment directly related to their illness free of charge. Treatment, medicines and equipment un-related to the condition will not be covered and must be paid for in the normal way. Therefore, it is advisable to also apply for the GP Visit Card and the Drug Payments Scheme. For information on the conditions covered by the scheme and to download the LTI application form click HERE
Mani-Pedi offer to SNPA members
From now until the end of June you and a friend can enjoy a Mini Mani + Classic Pedicure at the  Anna Shu Nail Lounge and Beauty Salon in Bray, Wicklow for the exclusive price of €56 for 2.
To avail of this fantastic offer email us at info@specialneedsparents.ie for your voucher. 
Many thanks to Anna Shu Lounge and Beaty Salon and to Lisa Domican for the initiative to encourage parents of children with special needs to take the time to "Care for Self". If this proves successful, we hope to encourage other local businesses around the county to get involved.

Getting Involved

The Special Needs Parents Association is a national non funded organisation run on a voluntary basis by parents of children with special needs. Our time is the most valuable resource we have and as the Association grows bigger and demand increases, we are looking for more parents to help out with specific areas such as helping out with fundraising, membership discounts and website. We would like to increase the amount of useful information and advice for parents on our website which is run on Wordpress. If you are familiar with this, it would be an advantage but not essential as we can show you what to do. So if you have some time to spare and would like to help out for an hour or two every week from the comfort of your own home, please email info@specialneedsparents.ie .

Website Titbits

Our website is being added to and updated regularly.
Education
Take a look at the Education section where we have included information on different types of schools, school transport scheme, third level access and much more.
Common Abbreviations
We have a comprehensive list of commonly used abbreviations that you might come across HERE
Progressing Disabiity Services for Children and Young People
Stay informed about the changes being planned in the way services are provided to our children and details of upcoming Parent Information Meetings HERE


Autism Conference

The Irish Centre for Autism and Neurodevelopmental Research at NUI Galway in collaboration with Autism Speaks, will host the 2nd International conference on Autism Spectrum Disorders on the 11th and 12th of June 2013, entitled: Autism Spectrum Disorder: from Research to Practice.More information and to register click HERE

Summer Camps

We are currently compiling a list of summer camps on our website, that cater for children with special needs across Ireland. We hope that all camps practice a policy of Inclusion, but sometimes support staff cannot be provided and practical difficulties can get in the way. There are more and more camps being set up specifically to cater for the needs of children with disabilities, if you know of one running in your local area, please send details to claire@specialneedsparents.ie to be added to the list. 
Please remember to mention us to your friends. Membership of SNPA is free and we have a website, facebook page, private facebook group and twitter feed aswell as our monthly newsletter, all helping to  "bring parents together."
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