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September 2020
IN THIS ISSUE
  • Future Thinking
  • FPF News Highlights
  • FPF in the Media
  • FPF Movers & Shakers
  • Upcoming Events
  • Additions to the Team
Future Thinking
A paradox of telework and the pandemic is that while we feel distanced from our officemates, we seem closer than ever to colleagues on other continents. The global privacy ecosystem is increasingly interconnected, and FPF is expanding to meet the needs of stakeholders around the world:
  • During the last year, we formalized our European presence by hiring Rob van Eijk as FPF Managing Director for Europe. He is building strong partnerships across the continent by engaging with policymakers, regulators, and EU data protection authorities. 
  • We established a partnership with Dublin City University and jointly hosted a webinar with DCU in July on the role of Data Protection Officers. 
  • The Israel Tech Policy Institute, our office in the Middle East, continues to grow under the leadership of Limor Shmerling Magazanik. It is engaging industry, government, advocacy, and academic stakeholders on a range of data protection, ethics, and human rights issues.
  • Led by Gabriela Zanfir-Fortuna, our team also has been tracking new data protection laws and proposals around the world, such as Brazil’s Lei Geral de Proteção de Dados, known as the “LGPD.” We’ve published analyses of Schrems II, various aspects of the GDPR, and a proposed overhaul of India’s data protection regulation.
In the coming year, we’ll be adding staff and expanding our international networks, while considering planning future expansion in Latin America and Asia. Stay tuned – and sign up if you’d like to track privacy developments in Brazil and other regions! 

Jules Polonetsky, FPF CEO
FPF News Highlights

FPF Presents First Award for Research Data Stewardship

FPF awarded the first-ever FPF Award for Research Data Stewardship to Lumos Labs and University of California, Irvine Professor Mark Steyvers at a virtual awards event. This event included the presentation of the award, a discussion of the project done by Professor Steyvers and Lumos Labs, and a Q&A from both FPF staff and the audience. 

The award-winning collaboration, announced in May, between Professor Steyvers and Lumos Labs employed privacy techniques to transform data on user play into innovative cognitive science research.

FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing
 
FPF recently submitted comments to the National Committee on Vital and Health Statistics (NCVHS) ahead of a Virtual Hearing of the Subcommittee on Privacy, Confidentiality, and Security that took place on September 14, 2020. 

The hearing explored considerations for data collection and use during a public health emergency, in light of the deployment of new technologies for public health surveillance to tackle the nationwide COVID-19 pandemic. The Subcommittee used input from expert comments and testimony to inform the development and dissemination of a toolkit outlining methods and approaches to collect, use, protect, and share data responsibly during a pandemic.

Dr. Gabriela Zanfir-Fortuna Testifies at FTC Data Portability Workshop

On September 22, the Federal Trade Commission held a public workshop, “Data To Go,” examining the benefits and challenges of data portability frameworks for consumers and competition. As a panelist during the first discussion, FPF’s Dr. Gabriela Zanfir-Fortuna discussed a number of topics, including: how data portability operates in different commercial sectors; lessons learned from the GDPR and other global laws; and observations on the dual nature of data portability, as both a means to facilitate competition and a right of individuals to exercise control over their data.

Dr. Rachele Hendricks-Sturrup Presents at RightsCon 2020

The patient-consumer spectrum is a growing concept in which healthcare is rapidly transitioning from a periodic activity in fixed, traditional health care settings to an around-the-clock activity that involves the generation, use, and integration of data reflecting many aspects of individuals’ lives and behaviors. 
On July 27, 2020, during the RightsCon 2020 virtual conference, Dr. Rachele Hendricks-Sturrup, FPF’s Health Policy Counsel and Lead, moderated a conversation with three health data governance and policy expert panelists to explore the privacy concerns and potential policy solutions across the broadening patient-consumer spectrum.

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces

Recently, Elon Musk livestreamed an update for Neuralink—his startup centered around creating brain-computer interfaces (BCIs). It can be hard to separate the facts from the hype surrounding cutting edge product announcements, but it is clear that brain-computer interfaces are increasingly used by hospitals, schools, individuals, and others for a range of purposes. It is also clear that BCIs often use sensitive personal data and create data protection risks. 

In this blog post, Jeremy Greenberg and Katelyn Ringrose explain how BCI technologies work, how BCIs are used today, some of the technical challenges associated with implementing the technologies, and the data protection risks they can create.

Jules Honored with Dialogue on Diversity Civic Privacy Award

On September 25, Jules was given the Diversity Civic Privacy Award from Dialogue on Diversity. He received the award for, "exemplifying the country’s highest values and enriching the vital and humane society we strive for." Along with Jules, Rep. Lucille Roybal Allard was given the Tribune of the Good Society Award and Nelson Díaz, former Judge on the Court of Common Pleas at Philadelphia, was honored with the Law and Justice Award.

Student Privacy Pledge Bolsters Legal Requirements and Stronger Privacy Commitments in Education

The Student Privacy Pledge is a public and legally enforceable statement by edtech companies to safeguard student privacy, built around a dozen privacy commitments regarding the collection, maintenance, use, and sharing of student personal information. Since it was introduced in 2014 by FPF and the Software and Information Industry Associationmore than 400 edtech companies have signed the Pledge. In 2015, the White House endorsed the Pledge, and it has influenced company practices, school policies, and lawmakers’ approaches to regulating student privacy. Many school districts use the Pledge as they review prospective vendors, and it is aligned with—and has broader coverage than—the most widely-adopted state student privacy law.

FPF in the Media
Axios
Online learning's toll on kids' privacy

30 K–12 IT Influencers Worth a Follow in 2020

In TikTok, a bad omen for Chinese technology in Europe

Portland Passes Strongest Facial-Recognition Restriction in U.S.

Automotive News
‘Right to repair' battle heats up in Mass.
MobiHealth News
COVID-19 tracking tech – weighing personal and public health benefits against privacy

FPF Community Movers & Shakers
FPF is pleased to welcome new Advisory Board member Halsey Bertenthal, Senior Counsel, Optimizely.

FPF would also like to congratulate Agnes Bundy Scanlan of Cambridge Group, LLC and Elaine Laughlin, Director of Development at WSBE, for joining the FPF Board of Directors.

We are also pleased to announce Privitar, SafeGuard Privacy, and Tumult Labs as new supporters.

Congratulations to Advisory Board Member Lindsey Finch for being recognized by Fortune in their 2020 40 under 40 in Tech

FPF Advisory Board Member Lara Liss was recently profiled in the Modern Counsel piece, "Lara Liss Makes a Lasting Impact."

Job Openings:
Upcoming Events
Additions to the Team
Juliana Cato: Policy Fellow, Youth & Education Privacy
Dr. Carrie Klein: Senior Fellow, Youth & Education Privacy
Casey Waughn: Policy Fellow, Youth and Education Privacy
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